Research PresentationsThe following research has been accepted and is expected to be presented at Neuroethics 2024. If you need to make updates your listing, or you are no longer able to present your research in-person for virtually, please contact INS staff right away by email <[email protected]>.
Presentation 1Bridging the Governance Gap: Translating Global Neurorights to a Community-Engaged Framework in the United StatesFavour Nerrise (1) 1. Stanford University Methodology: Theoretical, Humanistic / Keywords: Artificial intelligence, Brain data, Medical ethics, Neurorights, Neurotechnology, Policy, Social justice Presentation 2Human brain organoid transplantation: testing the foundations of animal research ethicsAlexandre Erler Institute of Philosophy of Mind & Cognition, National Yang Ming Chiao Tung University Methodology: Theoretical, Humanistic / Keywords: Brain disorders, Enhancement, Philosophy, Research practice, Neural organoids Presentation 3To Explant or not to Explant: Deliberations on the Explantation of Neural Devices within Research Ethics CommitteesKatherine Bassil (1,2), Karin Jongsma (1) 1. Department of Bioethics and Health Humanities, Julius Center, University Medical Center Utrecht, The Netherlands; 2. Department of Psychiatry and Neuropsychology, Maastricht University, The Netherlands Methodology: Empirical / Keywords: Brain stimulation, Clinical care, Medical ethics, Neurorights, Neurotechnology, post-trial access Presentation 4Risk factors and ethical considerations for developing and commercializing neurotechnologies: Findings from interviews with institutional officialsTristan McIntosh, Meredith Parsons, Erin Solomon, Maya Skolnik Bioethics Research Center, Washington University School of Medicine Methodology: Empirical / Keywords: Neurotechnology, Policy, Research practice, Industry-academia partnerships Presentation 5It's Time for Community-Based Participatory Research in NeuroethicsMichelle T. Pham (1), Eran Klein (2,3), Sara Goering (3) 1. Center for Bioethics and Social Justice, Department of Medicine, College of Human Medicine, Michigan State University; 2. Department of Neurology, Oregon Health and Science University; 3. Department of Philosophy and Center for Neurotechnology, University of Washington, Seattle Methodology: Theoretical / Keywords: Brain stimulation, Neurotechnology, Patient perspectives, Philosophy, Engagement, Community-based participatory research Presentation 6“If there were more resources we could have done more”: Investigator perspectives on post-trial responsibilities in neural implant trialsNathan Higgins(1), John Gardner(2), Adrian Carter(1,2) 1. School of Psychological Sciences, Monash University, Australia; 2. School of Social Sciences, Monash University, Australia Methodology: Empirical / Keywords: Brain disorders, Brain stimulation, Neurosurgery, Neurotechnology, Research practice Presentation 7The Right to be Recognized? A Neuroethics Case Study on the Risks and Harms of Qualitative Data De-Identification NormsErika Versalovic, PhD (1); Asad Beck, BA (2); Sara Goering, PhD (1); Timothy E. Brown, PhD (3) 1. Department of Philosophy, University of Washington; 2. Department of Biology, University of Washington; 3. Department of Bioethics and Humanities, University of Washington School of Medicine Methodology: Theoretical, Humanistic / Keywords: Agency, Medical ethics, Neurotechnology, Patient perspectives, Research practice Presentation 8Demystifying the Risk of Reidentification in Neuroimaging Data – A Technical and Regulatory AnalysisAnita Jwa (1), Oluwasanmi Koyejo (2), Russell Poldrack (1) (1) Department of Psychology, Stanford University, (2) Department of Computer Science, Stanford University Methodology: Empirical, Legal / Keywords: Brain data, Law, Policy Presentation 9Agency and vulnerability: The dual-aspects of psychedelic-facilitated neuroplasticityLogan Neitzke-Spruill Center for Medical Ethics and Health Policy, Baylor College of Medicine Methodology: Theoretical / Keywords: Agency, Consciousness, Enhancement, Neurotechnology Presentation 10Neuroethics and trans studies: mapping an overdue overlapReina (Roland) Nadler 1. Peter A Allard School of Law, University of British Columbia; 2. Neuroethics Canada, Faculty of Medicine, University of British Columbia Methodology: Theoretical, Humanistic / Keywords: Autonomy, Enhancement, Identity, Neurorights, Social justice Presentation 11Neurocorrective Offers and Manipulative PressureSebastian Jon Holmen (1) , Emma Dore-Horgan (2) (1) Roskilde University, Deparment of Communication and Arts, Denmark; (2) Vrije Universiteit Amsterdam, Faculty of Humanities, Netherlands. Methodology: Theoretical, Humanistic / Keywords: Enhancement, Law, Neurotechnology, Philosophy, Presentation 12Public perceptions of emerging neurotechnologies used to target mood, memory, and motor symptoms.Rémy A. Furrer (1), Amanda R. Merner (1), Ian Stevens (1,2), Peter Zuk (1), Theresa Williamson (1), Francis X. Shen (1 3, 4) Gabriel Lázaro-Muñoz (1,3) 1. Harvard Medical School, Center for Bioethics; 2. Oregon Health & Science University, Department of Neurological Surgery; 3. Department of Psychiatry, MGH; 4. Harvard Law School Methodology: Empirical / Keywords: Brain disorders, Brain stimulation, Clinical care, Identity, Neurosurgery, Neurotechnology, Science communication Presentation 13Human supremacy in neuroethical discourse about human-nonhuman neural chimerasL. Syd M Johnson Upstate Medical University Methodology: Humanistic / Keywords: Consciousness, Neurotechnology, Philosophy, Research practice Presentation 14The Meaning of Brain DeathL. Syd M Johnson Upstate Medical University Methodology: Humanistic / Keywords: Consciousness, Law, Medical ethics, Philosophy, Social justice Presentation 15More hydra, than human? Ethical implications of information flows in human brain organoidsJ. Lomax Boyd Berman Institute of Bioethics, Johns Hopkins University Methodology: Theoretical / Keywords: Artificial intelligence, Brain data, Consciousness, Neurotechnology, Brain organoids Presentation 16Attitudes towards disease model explanations of chronic pain among Canadian and US adults without chronic pain: A contrastive vignette technique studyIris Coates McCall (1), Brooke Magel (1), Rachael L. Bosma (2,4), Chris Lo (2,5), Javeed Sukhera (6), Jennifer A. Chandler (7), Emeralda Burke (8), Dwayne Patmore (8), Karen D. Davis (2, 3), Daniel Z. Buchman (1,2, 3) 1. Centre for Addiction and Mental Health; 2. University of Toronto; 3. University Health Network; 4. Women’s College Hospital; 5. James Cook University; 6. Hartford Hospital/Institute of Living; 7. University of Ottawa, Centre for Health Law, Policy and Ethics; 8. Independent Researcher Methodology: Empirical / Keywords: Brain data, Identity, Medical ethics, Medical humanities, Science communication, Pain Presentation 17The prudential value of creativity; a neglected question in neuroethicsWelles Emerson 1) Augsburg University Methodology: normative / Keywords: Brain disorders, Enhancement, Philosophy, creativity, well-being Presentation 18Utilizing community stakeholder networks and community engagement studios to improve bi-directional learning, recruitment and engagement in human neuroimaging researchSusie Y. Huang (1, 2), Jonathan D. Jackson (3, 2), Helen Hemley (3), Francis X. Shen (2, 4, 5) 1. Massachusetts General Hospital, Division of Neuroradiology & Athinoula A. Martinos Center; 2. Harvard Medical School; 3. Community Access, Recruitment and Engagement (CARE) Research Center at MGH; 4. MGH Department of Psychiatry; 5. Harvard Law School Methodology: Empirical, Theoretical, This is both a theoretical and an empirical project. Our preliminary results will not yet include quantitative outcome metrics such as increase in enrollment numbers. But we will have *qualitative* evidence from our initial work. This paper focuses more on the theoretical justifications for the approach, while also presenting prelim data. / Keywords: Brain data, Neurotechnology, Patient perspectives, Policy, Research practice Presentation 19Always-on DBS and portable MRI evidence in the courtroom: Preventing misuse and promoting justiceSam Holloway (1), Ian Stevens (2,3), Robert Kim (4), Craig McFarland (5), Key Williams (5), Ithika Senthilnathan (6), Peter Zuk (7), Gabriel Lazaro-Munoz (3, 7), Francis X. Shen (1, 3, 7) 1. Harvard Law School; 2. Oregon Health & Science University; 3. Harvard Medical School; 4. University of Maryland; 5. Harvard College; 6. Duke University; 7. Massachusetts General Hospital Dept. of Psychiatry Methodology: Legal / Keywords: Brain data, Law, Neurotechnology Presentation 20Public attitudes toward using polygenic embryo screening for cognitive disorders and traitsRémy Furrer (1) Dorit Barlevy (2), Stacey Pereira (2), Shai Carmi (3), Todd Lencz (4), Gabriel Lázaro-Muñoz (1,5) 1. Harvard Medical School, Center for Bioethics; 2. Baylor College of Medicine, Center for Medical Ethics and Health Policy; 3. Hebrew University of Jerusalem; 4. Donald and Barbara Zucker School of Medicine at Hofstra/Northwell; 5. Department of Psychiatry, MGH Methodology: Empirical / Keywords: Brain disorders, Genetics, Medical ethics Presentation 21Clinical application of polygenic risk scores in child and adolescent psychiatry: Adolescent psychiatric patients’ perspectivesLauren A. Ginn (1,2), Amanda R. Merner (3), Page Trotter (1), Tiffany A. Campbell (3), Takahiro Soda (4,5), Brent J. Small (6), Eric A. Storch (7), Stacey Pereira (1), Gabriel Lázaro-Muñoz (3,8) 1. Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, Texas, USA; 2. Department of Biosciences, Rice University, Houston, Texas, USA; 3. Center for Bioethics, Harvard Medical School, Boston, Massachusetts, USA; 4. Department of Psychiatry, University of Florida, Gainesville, Florida, USA; 5. Center for Autism and Neurodevelopment, University of Florida, Gainesville, Florida, USA; 6. School of Aging Studies, University of South Florida, Tampa, Florida, USA; 7. Department of Psychiatry and Behavioral Sciences, Baylor College of Medicine, Houston, Texas, USA; 8. Department of Psychiatry, Massachusetts General Hospital, Boston, Massachusetts, USA Methodology: Empirical / Keywords: Genetics, Medical ethics, Mental health, Neurodisability, Patient perspectives Presentation 22When Risks Outlast Benefit: Post-Trial Phase of Implantable Neural Device Trials and a Case for IRB Vulnerable Group DesignationAna Lucía Battaglino (1), Amanda R. Merner (1), Erika Versalovic (1,2), Megan S. Wright (3), Joseph J. Fins (4, 5), Gabriel Lázaro-Muñoz (1,6,7). 1) Center for Bioethics, Harvard Medical School; 2) Department of Philosophy, University of Washington; 3) Pennsylvania State University; 4) Weill Cornell Medical College; 5) Yale Law School; 6) Department of Psychiatry, Massachusetts General Hospital; 7) Department of Global Health and Social Medicine, Harvard Medical School. Methodology: Empirical, Theoretical / Keywords: Brain stimulation, Medical ethics, Mental health, Research practice, Social justice Presentation 23Psychiatric Polygenic Risk Scores in Reproductive Decision-Making: Perspectives from Adults with Psychiatric ConditionsAna Lucía Battaglino (1), Amanda R. Merner (1), Page M. Trotter (2), Lauren A. Ginn (2,3), Dorit Barlevy (2), Eric Storch (4), Stacey Pereira (2), Gabriel Lázaro-Muñoz (1, 5, 6). 1) Center for Bioethics, Harvard Medical School; 2) Center for Medical Ethics and Health Policy, Baylor College of Medicine; 3) Rice University; 4) Department of Psychiatry and Behavioral Sciences, Baylor College of Medicine; 5) Department of Psychiatry, Massachusetts General Hospital; 6) Department of Global Health and Social Medicine, Harvard Medical School. Methodology: Empirical / Keywords: Clinical care, Genetics, Medical ethics, Mental health, Patient perspectives Presentation 24A scoping review of global neurosurgery and ethicsIan Stevens, MA (1,2), Georgia Greenblum, BS (1), Ali Rae, MD, MPH (1) 1) Department of Neurosurgery, Oregon Health & Science University, Portland, OR, 97239; 2) Center for Bioethics at Harvard Medical School, Boston, MA, 02115 Methodology: Empirical / Keywords: Brain disorders, Global health, Medical ethics, Neurosurgery Presentation 25Clinical Implementation of Polygenic Risk Scores in Child and Adolescent Psychiatry: Clinicians’ Views and ExperiencesAmanda R. Merner1*, Page M. Trotter2, Lauren A. Ginn2,3, Jason Bach4, Katherine J. Freedberg5, Tiffany A. Campbell1, Takahiro Soda6,7, Brent J. Small8, Eric A. Storch9, Stacey Pereira2, Gabriel Lázaro-Muñoz1,10 (*Indicates presenting author) 1. Center for Bioethics, Harvard Medical School, 2. Center for Medical Ethics and Health Policy, Baylor College of Medicine, 3. Department of Biosciences, Rice University, 4. University of Pennsylvania Carey Law School, 5. Thomas Jefferson University Hospital; 6. Department of Psychiatry, University of Florida, Gainesville, 7. Center for Autism and Neurodevelopment, University of Florida, Gainesville, 8. School of Aging Studies, University of South Florida, 9. Department of Psychiatry & Behavioral Sciences, Baylor College of Medicine, 10. Department of Psychiatry, Massachusetts General Hospital Methodology: Empirical / Keywords: Clinical care, Genetics, Mental health, Clinician perspectives Presentation 26“I figured we'd face that when we got there”: Care Partners’ Perspectives on Post-trial device maintenance in adaptive DBS trialsAmanda R. Merner1, Kristin Kostick-Quenet2, Laura Torgerson2, Jill Robinson2, Stacey Pereira2, Simon Outram3, Philip A. Starr4, Aysegul Gunduz5,6, Kelly D. Foote5, Michael S. Okun5, Wayne Goodman7, Amy L. McGuire2, Peter Zuk1, Gabriel Lázaro-Muñoz1,8 1. Center for Bioethics, Harvard Medical School, 2. Center for Medical Ethics and Health Policy, Baylor College of Medicine, 3. Program in Bioethics, University of California, San Francisco, 4. Department of Neurological Surgery, University of California, San Francisco; 5. Norman Fixel Institute for Neurological Diseases, Departments of Neurology and Neurosurgery, University of Florida, 6. Department of Biomedical Engineering, University of Florida; 7. Department of Psychiatry and Behavioral Sciences, Baylor College of Medicine; 8. Department of Psychiatry, Massachusetts General Hospital Methodology: Empirical / Keywords: Brain disorders, Brain stimulation, Neurosurgery, Neurotechnology, post-trial responsibilities Presentation 27The ethics of deep brain stimulation for food addiction disorders: BMI as Body Mass Index versus Biased Measure for Indicating surgeryIan Stevens, MA (1,2) 1) Department of Neurosurgery, Oregon Health & Science University, Portland, OR, 97239; 2) Center for Bioethics at Harvard Medical School, Boston, MA, 02115 Methodology: Theoretical / Keywords: Brain disorders, Brain stimulation, Medical ethics, Neurosurgery, Research practice Presentation 28The ethics of brain-based visual prostheses: researcher viewsPeter Zuk (1), Gabriel Lázaro-Muñoz (1,2) 1. Harvard Center for Bioethics; 2. Massachusetts General Hospital Methodology: Empirical / Keywords: Brain stimulation, Medical ethics, Neurodisability, Neurotechnology, Research practice Presentation 29Mental privacy, self-expression, and hermeneutical injusticePeter Zuk Harvard Center for Bioethics Methodology: Theoretical, Humanistic / Keywords: Autonomy, Brain data, Neurorights, Philosophy, Social justice Presentation 30Engaging older adults in technology research: Exploring opportunities for flourishing.Susanna Martin (1,2,3), Cindy Zhang (1,2,3), Mallorie Tam (1,2,3), Julie Robillard (1,2,3). 1) University of British Columbia, Vancouver, BC, Canada; 2) BC Children’s and Women’s Hospital, Vancouver, BC, Canada; 3) Neuroethics Canada, University of British Columbia, Vancouver, BC, Canada. Methodology: Empirical, Humanistic / Keywords: Patient perspectives, Research practice, Flourishing Presentation 31Exploring motivators, barriers, and access to genetic testing for a rare eye diseaseMallorie T. Tam (1,2,3), Alonso Daboub (1,2,3), Hayami Lou (1,2,3), Julie M. Robillard (1,2,3) 1.University of British Columbia, Department of Medicine, Division of Neurology, Vancouver, British Columbia, Canada; 2.BC Children’s and Women’s Hospital, Vancouver, British Columbia, Canada; 3. Neuroethics Canada, University of British Columbia, Vancouver, BC, Canada Methodology: Empirical / Keywords: Genetics, Patient perspectives, Policy, Aniridia Presentation 32Towards ethical social media use in dementia prevention researchViorica Hrincu (1,3), Grayden Zaleski (1,3), Julie M. Robillard (1,2,3) 1. Division of Neurology, Department of Medicine, University of British Columbia, Vancouver, BC, Canada; 2. BC Children’s and Women’s Hospital, Vancouver, BC, Canada; 3. Neuroethics Canada, University of British Columbia, Vancouver BC, Canada Methodology: Empirical / Keywords: Patient perspectives, Research practice, Science communication Presentation 33Guideline-based care for psychiatric electroceuticals: results from a national survey of board-certified psychiatristsJ. E. Cunningham 1, R. Bluhm 2, E. D. Achtyes 3, A. M. McCright 4, L.Y. Cabrera 5-6 1 College of Human Medicine, Michigan State University, East Lansing, MI, USA; 2 Department of Philosophy and Lyman Briggs College, Michigan State University, East Lansing, MI, USA; 3 Department of Psychiatry, Western Michigan University Homer Stryker M.D. School of Medicine, Kalamazoo, MI, USA; 4 Department of Sociology, Michigan State University, East Lansing, MI, USA; 5 Center for Neural Engineering, Department of Engineering Science and Mechanics, Pennsylvania State University, University Park, PA, USA; 6 Rock Ethics Institute, Pennsylvania State University, University Park, PA, USA. Methodology: Empirical / Keywords: Brain disorders, Brain stimulation, Clinical care, Neurotechnology Presentation 34Attitudes and ethical concerns related to the application of Transcranial Magnetic Stimulation (TMS) in adolescentsL. Y. Cabrera,1 Patricia Henegan,2 Paul E. Croarkin3 1The Pennsylvania State University 2 University of Massachusetts-Amherst, 3 Mayo Clinic Methodology: Empirical / Keywords: Autonomy, Brain stimulation, Medical ethics, Mental health, Neurotechnology Presentation 35Inclusivity and diversity in human neuromodulation research supported by the NIHKatherine Bailey (1), Laura Y. Cabrera (2), Emily Shank(2), Judy Illes (1) 1. Neuroethics Canada, Division of Neurology, Department of Medicine, and School of Medicine, University of British Columbia; 2. Center for Neural Engineering, Pennsylvania State University Methodology: Empirical / Keywords: Medical ethics, Neurorights, Neurotechnology, Policy, Social justice Presentation 37Fracking the brain: Ethical and neurological considerations of unconventional oil and gas developmentAva Grier (1,2), and Judy Illes (2) 1. Neuroethics Canada, Division of Neurology, Department of Medicine, University of British Columbia; 2. Graduate Program in Neuroscience, University of British Columbia Methodology: Empirical / Keywords: Global health, Mental health, Neurological, Environment Presentation 38Open Science in the Technology Transfer OfficeAri Rotenberg, Judy Illes Neuroethics Canada, Division of Neurology, Faculty of Medicine, University of British Columbia Methodology: Empirical / Keywords: Neurotechnology, Research practice, Science communication Presentation 39The power of communication for empowering people with spinal cord injurySamantha P. Go, Tanya Barretto, Alaa Yehia, Judy Illes 1. Neuroethics Canada, Department of Medicine, The University of British Columbia Methodology: Empirical / Keywords: Global health, Literature, Medical humanities, Research practice, Science communication Presentation 40Remuneration and reciprocity in research with marginalized populationsQuinn Boyle, Judy Illes Neuroethics Canada, Division of Neurology, Department of Medicine, University of British Columbia, Vancouver, British Columbia, Canada Methodology: Theoretical, Pragmatic / Keywords: Agency, Consciousness, Research practice Presentation 41Building an ethics foundation for future spinal cord injury clinical trialsTanya A. Barretto, Vyshnavi Manohara, Judy Illes Neuroethics Canada, Division of Neurology, Department of Medicine, University of Columbia, Vancouver, British Columbia Methodology: Empirical / Keywords: Clinical care, Medical ethics, Policy, Research practice, Science communication Presentation 42Geographical participation in prestigious neuroscience researchMarziah Hakim (1), Kate Beecher (2), Joshua Wang (3) 1. School of Medicine, Sydney, University of Notre Dame Australia, Darlinghurst 2010, NSW, Australia; 2. UQ Centre for Clinical Research, Faculty of Medicine, University of Queensland, Building 71/918 Royal Brisbane and Women’s Hospital Campus, Herston 4029, QLD, Australia; 3. School of Clinical Sciences, Faculty of Health, Queensland University of Technology, 2 George Street, Brisbane 4000, QLD, Australia. Methodology: Empirical / Keywords: Cross-culture, Research practice, Science communication Presentation 43Co-designing a nationwide digital mental health service for diverse communitiesIsobel Butorac (1), Associate Professor Adrian Carter (1), Dr Roisin McNaney (2), Joshua Seguin (2) and Professor Patrick Olivier (2). 1. Turner Institute for Brain and Mental health, The School of Psychological Sciences, Monash University, Australia; 2. Action Lab, Department of Human Centred Computing, Monash University, Australia Methodology: Empirical / Keywords: Brain data, Clinical care, Cross-culture, Mental health, Patient perspectives, Social justice Presentation 44Neurotechnological visions: ethical reflections on portrayals of transhumans and neurotechnologies in the Blade Runner universeJohn Noel Viana (1,2), Louisa Shen (3), Anna-Sophie Jurgens (2) 1. Justice and Technoscience Laboratory (JusTech), School of Regulation and Global Governance (RegNet), College of Asia and the Pacific, The Australian National University; 2. Australian National Centre for the Public Awareness of Science (CPAS), College of Science, The Australian National University; 3. School of Cybernetics, College of Engineering, Computing and Cybernetics, The Australian National University Methodology: Humanistic / Keywords: Art, Artificial intelligence, Identity, Neurotechnology, Science communication Presentation 45Perceived Discrimination Influences Cognition in a Race-Independent MannerShreya Ramanathan, Whitney Wharton, McKayla Williams, Dominika Swieboda, Brittany Butts Emory University School of Nursing Methodology: Empirical / Keywords: Brain disorders, Clinical care, Social justice Presentation 46Psychedelic retreats: Ethical issues regarding underground access to psychedelicsCaroline S. Beit (1), Amy McGuire (1), Jill Robinson (1), Emily Curl (1) Logan Neitzke-Spruill (1) 1. Baylor College of Medicine Methodology: Empirical / Keywords: Autonomy, Clinical care, Consciousness, Law, Medical ethics, Medical humanities, Mental health, Policy, Psychedelics Presentation 47Framing Alzheimer’s Disease in India through self, familial, social, and governmental perspectivesChinmayi Balusu Department of Epidemiology, Columbia University Methodology: Humanistic / Keywords: Autonomy, Brain disorders, Clinical care, Cross-culture, Global health, Literature, Medical ethics, Medical humanities, Patient perspectives, Policy Presentation 48Paint Me a Picture with Words - Why Patients with Aphasia Can Have Clinical Conversations at Eye Level and How We Need to Change Our CommunicationFranziska B. Schönweitz (1), Laura Schiffl (2), Antonio Scarafone (3,4), Anja K. Ruess (5,6), Ruth Müller (5,6), Simon Jacob (2), Alena Buyx (1) 1. Institute of History and Ethics in Medicine, TUM School of Medicine and Health, TUM School of Social Sciences and Technology, Technical University of Munich, Munich, Germany; 2. Translational Neurotechnology, Department of Neurosurgery, TUM School of Medicine and Health, Technical University of Munich, Munich, Germany; 3. Chair of Philosophy of Mind, Faculty of Philosophy, Philosophy of Science and Religious Studies, Ludwig Maximilian University, Munich, Germany; 4. Faculty of Letters, University of the Basque Country (UPV/EHU), Lejona, Spain; 5. Department of Science, Technology and Society (STS), TUM School of Social Sciences and Technology, Technical University of Munich, Munich, Germany; 6. Department of Economics and Policy, School of Management, Technical University of Munich, Munich, Germany Methodology: Empirical, Theoretical / Keywords: Art, Autonomy, Brain disorders, Clinical care, Identity, Neurodisability, Neurotechnology, Patient perspectives, Research practice Presentation 49Repetitive transcranial magnetic stimulation for major depressive disorder: a scoping reviewAriana D’Alessandro, Ronald Dempsey, and Veljko Dubljevic North Carolina State University Methodology: Empirical / Keywords: Autonomy, Brain stimulation, Clinical care, Medical ethics, Medical humanities, Mental health Presentation 51The bioenhancement of human values: A scoping reviewHunter Bissette, Ryan Sterner, Dario Cecchini, Veljko Dubljevic North Carolina State University Methodology: Theoretical, Humanistic / Keywords: Agency, Brain stimulation, Enhancement, Neurotechnology, Philosophy Presentation 52The Debate on Pharmacological Neuroenhancement and the Case of Selective Noradrenaline Reuptake InhibitorsSeth Kodikara (1), Steven Peppers (1) and Veljko Dubljevic (1) 1. North Carolina State University Methodology: Empirical / Keywords: Enhancement Presentation 53From guidelines to tools: the role of NIH BRAIN investigators’ perspectives on the ethics of intracranial researchAlly Peabody Smith (1), Lilyana Levy (1), Hamasa Ebadi (2), Colleen Hansen (3), Nader Pouratian (2), Ashley Feinsinger (1) 1. David Geffen School of Medicine, University of California, Los Angeles, Department of Medicine; 2. University of Texas Southwestern Medical Center, Department of Neurological Surgery; 3. University of California, Los Angeles, Department of Philosophy Methodology: Empirical / Keywords: Clinical care, Medical ethics, Policy, Research practice, Investigator perspectives Presentation 54Re-thinking participant engagement in neurotechnology: towards a novel approach to improving benefit profiles for participants in early feasibility trialsLilyana Levy PhD, Ashley Feinsinger PhD UCLA David Geffen School of Medicine Methodology: Theoretical / Keywords: Medical ethics, Neurodisability, Neurotechnology, Philosophy, Research practice Presentation 55“Am I locked-in?” Illness trajectories and the experience of locked-in syndrome in Japan and EuropeHimeno, Yukiko (1), Mima, Tatsuya (1), Vidal, Fernando (2,3) 1. Ritsumeikan University, Kyoto, Japan; 2. ICREA-Catalan Institution for Research and Advanced Studies; 3. Medical Anthropology Research Center, DAFITS-Rovira i Virgili University, Tarragona, Spain Methodology: Empirical / Keywords: Agency, Autonomy, Cross-culture, Medical ethics, Patient perspectives Presentation 56Locked-In Syndrome as a NeurodivergenceChristian Carrozzo Department of Philosophy, University at Albany, SUNY; Department of Philosophy, George Mason University; John J. Lynch, MD Center for Ethics, MedStar Health Methodology: Theoretical / Keywords: Autonomy, Consciousness, Medical ethics, Neurodisability, Philosophy Presentation 57The Foundational Role of Autonomy for Brain-Computer InterfacesFlorian Richter University of Applied Sciences Ingolstadt (Technische Hochschule Ingolstadt), Germany Methodology: Theoretical, Humanistic / Keywords: Agency, Artificial intelligence, Autonomy, Neurotechnology, Philosophy Presentation 58Neurorights on Youtube: Investigating Ethical Considerations of Neurotechnology in Public DiscourseAlexander Sobieska (1), Marcello Ienca (1) 1. TU Munich, Institute of History and Ethics in Medicine Methodology: Empirical / Keywords: Neurorights, Neurotechnology, Science communication, Public Discourse Presentation 59Speech decoding and the ethical tension between communication-restoring and surveillance technologies.Narayan Sankaran (1), Winston Chiong (2) 1. Kavli Center for Ethics, Science, and the Public, UC Berkeley; 2. Memory and Aging Center, Department of Neurology, University of California San Francisco, Methodology: Theoretical / Keywords: Agency, Brain data, Neurorights, Neurotechnology, Science communication Presentation 60The ethics of forced brain-state transitions: finding the middle ground between data-based ethics and speculative ethicsKarmele Olaciregui Dague Epileptology Department, Bonn University Hospital Methodology: Theoretical / Keywords: Brain data, Brain disorders, Brain stimulation, Consciousness, Medical ethics, Neurorights, Neurotechnology, Philosophy, Science communication Presentation 61More alike than unalike: From neurodiversity to cognitive continuityJoshua May University of Alabama at Birmingham Methodology: Theoretical / Keywords: Agency, Mental health, Neurodisability, Neurorights, Social justice Presentation 62Brainhype and for-profit medical devices: filling the gap.Marta Vassallo(1,2), Mario Picozzi(1) 1) Department of Biotechnology and Science of Life, Center for Clinical Ethics, University of Insubria, Varese 2)Istituti Clinici Scientifici Maugeri IRCCS, department of Neurology, Milan Methodology: Theoretical / Keywords: Artificial intelligence, Brain data, Neurorights, Brainhype; Neurohype Presentation 63What ethics does neuroethics bring to bear on the issue of neurotechnologies?laure tabouy (1, 2) 1. University of Paris-Saclay, ethics and epistemology team, CESP INSERM-U1018, Villejuif Cedex, France ; 2. Agence de la biomédecine, Paris, France. Methodology: Empirical, Humanistic, neuroscientific / biologist / Keywords: Artificial intelligence, Autonomy, Brain data, Enhancement, Identity, Law, Neurorights, Neurotechnology, Philosophy, Research practice Presentation 64Neuroscience's ethical imperative to explain, and not merely predict, mental illnessGrace Huckins Stanford University Methodology: Theoretical / Keywords: Brain data, Brain disorders, Mental health, Philosophy, Research practice Presentation 65On the contribution of Christian theology to ethical deliberation about neurotechnologies and AINeil Messer Department of Religion, Baylor University. Methodology: Theoretical, Humanistic, Theological / Keywords: Agency, Artificial intelligence, Identity, Neurotechnology, Theology Presentation 66Adapting Embedded Neuroethics for Private Neurotechnology IndustryBlake Hereth (1), Anna Wexler (1) 1. Department of Medical Ethics & Health Policy, University of Pennsylvania Perelman School of Medicine Methodology: Theoretical / Keywords: Neurotechnology, Philosophy, Research practice, Embedded ethics Presentation 67Exploring Neuroethical Dimensions Through the Dreams System of the Lee Miye’s "Dallergut Dream Department Store"Ekaterina Shipova (1), Ji Hyun Yang (2), So Yoon Kim (2) "1. Division of Medical Law and Ethics, Yonsei University Graduate School; 2. Division of Medical Law and Ethics, Dept. of Medical Humanities and Social Sciences, Yonsei University College of Medicine." Methodology: Humanistic / Keywords: Art, Autonomy, Consciousness, Literature, Mental health Presentation 68Beyond the Two Cultures: The Epistemologies and Ethics of NeuroArt.Katharina Trettenbach 1. University of Erlangen 2. University of Tübingen 3. University of Potsdam Methodology: Theoretical, Humanistic / Keywords: Art, Medical humanities, Philosophy, Research practice, SciArt Presentation 69The MANET (museum art in neurology education training) programTatiana Greige (1), David Odo (2), Camran Mani (3) 1. Department of Neurology, Boston Medical Center 2. Georgia Museum of Art 3. Harvard Art Museums Methodology: Empirical / Keywords: Art, Clinical care, Medical ethics, Medical humanities Presentation 70To cut or not to cut: association of brain tumor resection with altered neuropsychological experiencingLiliana Ladner (1), Martha I. Vilca-Salas (2), Bayan Al Zoabi (3) 1. Virginia Tech Carilion School of Medicine, USA; 2. Universidad Peruana Cayetano Heredia, Peru; 3. Batterjee Medical College, Saudi Arabia Methodology: Empirical / Keywords: Brain disorders, Clinical care, Medical ethics, Mental health, Neurosurgery Presentation 71Playing with Cognition: Considerations for Developing and Utilizing Serious Video Games for Diagnosis and Treatment in Youth Mental/Behavioral HealthMegan Jiao (1), Kammarauche Aneni (2) 1. McGovern Medical School, University of Texas Health Science Center at Houston; 2. Yale University Methodology: Theoretical / Keywords: Brain data, Clinical care, Medical ethics, Mental health, Neurotechnology Presentation 72Data on financial toxicity concerns for patients as neurotechnology use increases: Where we are and where we need to goChristiana O. Oshotse, BA (1), Maya V. Roytman, BS (2), Theresa Williamson, MD, MPH (3) 1. Harvard Medical School; 2. Loyola University Chicago Stritch School of Medicine, Neiswanger Institute for Bioethics; 3. Department of Neurosurgery, Massachusetts General Hospital, Harvard Medical School Methodology: Systematic review / Keywords: Agency, Clinical care, Neurotechnology, Policy, Social justice Presentation 73What do people think about brain banks? - A survey of public awareness and attitudes toward brain research resource donation.Ji Hyun Yang (1,2), Ilhak Lee (1,2) 1. Division of Medical Law and Ethics, Department of Medical Humanities and Social Science, Yonsei University College of Medicine. 2. Asian Institute for Bioethics and Health Law, Yonsei University. Methodology: Empirical / Keywords: Brain data, Medical ethics, Patient perspectives, Policy, Science communication Presentation 74“When these studies are over, they’re not over": continuing trial responsibilities for implantable neural device trialsSaskia Hendriks (1,3), Nina Hsu (1), Andrea C Beckel-Mitchener (2), John Ngai (2), Christine Grady (3) "1. Office of Neuroscience Communications and Engagement, NINDS, NIH, Bethesda, MD, USA. 2. NIH BRAIN Initiative, NIH, Bethesda, MD, USA. 3. Department of Bioethics, NIH Clinical Center, Bethesda, MD, USA." Methodology: Theoretical, Workshop summary, literature review, and normative analysis / Keywords: Brain stimulation, Clinical care, Neurotechnology, Policy, Research practice Presentation 76Volitional BCI: Designing for agency in invasive brain computer interfaceCourtnie Jean Paschall (1,2), Gabrielle Strandquist (1,3), Asad Beck(1,4), Timothy Brown (1,2,5) 1. University of Washington - Seattle; 2. University of Washington School of Medicine; 3. Paul G. Allen School of Computer Science; 4. Department of Biology; 5. Department of Bioethics & Humanities Methodology: Theoretical / Keywords: Agency, Autonomy, Brain stimulation, Neurotechnology, Volition Presentation 77What does a donor need to know? A critical look at informed consent documents for brain organoid researchZoë JoEllen Hale (1) , Abril Beretta (2), Chloe Dahleen (1), Dr. Kate MacDuffie (2, 3) 1. University of Washington; 2. Treuman Katz Center for Pediatric Bioethics and Palliative Care, Seattle Children's Research Institute; 3. Department of Pediatrics, Division of Bioethics and Palliative Care, University of Washington School of Medicine Methodology: Empirical / Keywords: Research practice, Science communication, Brain organoids, Informed consent Presentation 78JEDI on the BRAIN: a Justice Approach to Building Human Brain Cell AtlasesMaria Sourdi (1,2), Zoe Hale (1), Tim Brown (1) 1. University of Washington; 2. University of Heidelburg Methodology: Theoretical, Humanistic / Keywords: Brain data, Literature, Neurodisability, Research practice, Social justice Presentation 79Cognitive enhancement as transformative experience: The challenge of wrapping one’s mind around enhanced cognition via neurostimulationPaul A. Tubig (1), Eran Klein (2, 3, 4) 1. Department of Philosophy & Religious Studies, Georgia Southern University; 2. Department of Neurology, Oregon Health and Science University; 3. Portland Veterans Administration Health Care System; 4. Department of Philosophy and Center for Neurotechnology, University of Washington Methodology: Empirical, Theoretical / Keywords: Enhancement, Identity, Philosophy, Research practice, Transformative Experience Presentation 80Prosthetic Users’ Perspectives and Concerns on Participation in Neuroprosthesis ResearchJuhi Farooqui (1,2), Tim Brown (3), Lee Fisher (2,4) 1. Neuroscience Institute, Carnegie Mellon University; 2. Rehab Neural Engineering Labs, University of Pittsburgh; 3. Department of Bioethics & Humanities, University of Washington School of Medicine; 4. Department of Physical Medicine and Rehabilitation, University of Pittsburgh Methodology: Empirical / Keywords: Neurotechnology, Patient perspectives, Research practice, Science communication, Social justice Presentation 81Artificial intelligence and traumatic brain injury: balancing technological advancement with ethical responsibility to provide equitable careAdvaita Krishnan (1), Chinmayi Balusu (2) 1. Center for the Study of Human Health, Emory University; 2. Department of Epidemiology, Columbia University Methodology: Theoretical / Keywords: Artificial intelligence, Brain data, Clinical care, Medical ethics, Social justice |